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SOS also provides peer matches for individuals with disabilities, extended family members or professionals.

Resources on aging with Developmental Disabilities

 

Read a review of the current demographic trends and best practices in aging and developmental disabilities!  This report was written by the UMKC-Institute for Human Development for the Missouri Department of Mental Health's Division of MR/DD.  Click here to view the report.

General Resources:

 

Aging and DD by Issue Area

Successful Aging:

    • Discover the myths and realities of aging. Learn about the power of universal design to maximize health, quality of life and longevity. Learn to accommodate the needs of your older employees, family members, and customers. Look at choices in housing which guarantee that you will "age in place" and never be moved along a continuum to independent, assisted, or skilled care.

 

Caregiving:

 

Health Care:

  • Be an Active Health Care Consumer
    • As part of its effort to help consumers become better informed and participate as partners in their own health care, the Agency for Healthcare Research and Quality (AHRQ) has developed materials that will help patients get safer, higher quality care. Part of the U.S. Department of Health and Human Services, AHRQ is leading the Government's efforts to improve the quality, safety, and effectiveness of health care for all Americans.
  • Fact Sheets for Healthy Aging
    • The University of Illinois at Chicago's RRTCADD’s Facts for Healthy Aging , educates adults with disabilities about health conditions and impairments that typically occur in later life. Each fact sheet provides a concise and understandable explanation of the cause, symptoms and treatments of a specific health condition. These fact sheets were adapted from the “Age Pages” series for the general population developed by the National Institute on Aging.
  • Exercise and nutrition health education curriculum for adults with developmental disabilities, (2006, 3rd Ed.). Marks, B.A., Heller, T., & Sisirak, J.
    • This innovative curriculum is a 12-week interactive program specifically designed for individuals with developmental disabilities (DD). Each week, participants enjoy three 1-hour sessions, where they are encouraged to understand their attitudes toward health, food and exercise; to gain skills and knowledge about healthy eating and exercising; to identify food and exercise preferences; to participate in food preparation and exercise activities; and, to locate places in their community where they can exercise regularly. Strategies that are woven throughout this curriculum include making choices, self-determination, self-efficacy, self-advocacy, and rights and responsibility, along with problem-solving techniques and conflict resolution. Direct staff or health professionals can easily adapt the curriculum to meet the unique needs and capacities of individuals with DD and their agencies. The RRTCADD can provide train-the-trainer sessions for agencies or groups to familiarize facilitators with the curriculum philosophy, goals and training materials. Training session(s) simulate experiences similar to the actual health education program. Trainers-in-training are encouraged to complete exercises that they will ask future participants to do.
  • Overview of Aging and DD Health Care Issues PowerPoint presentation
    • Brief visual overview of general issues in aging, dd and health care issues.
  • Medicare Report from Families USA
    • Medicare Prescription Drug Benefit Progress Report: Findings from A 2006 National Survey of Seniors provides an in-depth look at the experiences seniors have had with Medicare Part D. The survey, which was administered to approximately 16,000 seniors in English and in Spanish, found that most seniors enrolled in the program paid less out of pocket for drugs than those with no coverage, but they still paid more than those who had coverage from other sources (like employer-based coverage). (Commonwealth Fund, Kaiser Family Foundation, and Tufts-New England Medical Center)
    • Medicare Advantage Payment Policy provides an overview of Medicare Advantage. It explains how plans are paid, reviews recent trends in plan participation and enrollment, and considers key issues raised by proposals to change the payment system. (The National Health Policy Forum)

 

Retirement:

  • Senior Corps
    With programs like Foster Grandparents and Senior Companions, the corps matches those over 55 with kids and adults in need

 

Housing:

  • Information on Aging in Place
    • Increasingly, more and more people prefer to age in place rather than move to a nursing home or other medically-based setting.
  • Universal Design-
    • Learn about the 7 principals of universal design. Movement to more restrictive settings can be prevented if we redesign living spaces to fit with the space and mobility needs of the aging individual.

 

End of Life Planning:

 

Aging and DD Policy and Legislation Resources

 

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